AVONEX: FDA Approved Drugs and User Comments

User Comments:

For Multiple Sclerosis “I am an RN working on my master’s degree. I used to be an Avonex nurse. The biggest issue I found regarding the flu-like symptoms is that people forget to hydrate well the day of and sometimes the day before the injection. Or, they were ill some days before the injection (vomiting or diarrhea maybe from a stomach bug), or, they ran a marathon a few days before. Always consult your physician on hydration but unless you have fluid restrictions for medical reasons, you should be drinking 8 glasses of water a day (usually 64 ounces a day), or more if you exercise and are active regularly. You must stay hydrated with MS especially if you will be out in the sun to prevent the “flare” symptoms. (There are some blog sites for MS patients that swear by eating pineapple before the injection too – something about the enzymes in pineapple that helps combat side effects, and many patients reported this to me as well.)”

Sissy March 7, 2018

For Multiple Sclerosis “I have been on avonex since August 2017 had flu like symptoms after injecting but went away after 24 hours now 7 months later feeling anxious , sleepless nights dizzy spells , weakness and unstable when walking. Anyone else had this experience I am not sure if it’s medicine related or not but can’t help thinking it is . Thinking about changing my meds but don’t think I could inject more than once a week ….”

Jenfishcake February 21, 2018

For Multiple Sclerosis “I just started this medication. With each injection the side effects have gotten worse. I did my 3rd dose last night & I’m miserable. The body/muscle aches, headaches etc. are about unbearable. Each time I took two 500 mg Tylenol before my injection as recommended by my training nurse. I was told about the flu like symptoms, read the booklet my Neuro gave me, but I thought the symptoms would subside at least halfway through the next day. I am so pained. I keep taking Tylenol & even my muscle relaxer hoping for relief. But Nothing seems to help. I called into Biogen after my 2nd dose. No help. Copaxone gave me bad brain fog & injection site reactions. Tecfidera kept me in the bathroom in unbelievable pain. Not sure what to do now.”

Nhl742 September 13, 2017

For Multiple Sclerosis “I am almost 68 yo; diagnosed w/LOMS in ’15. Immediately went on Avonex (wkly self injectable pen). Symptoms have not progressed and I am stable over the past 2.5 yrs. I do well with the shots; have learned to travel with medication and have taken care of my needs worldwide! I initially had the flu like symptoms post injection but they dissipated over time, but here at 30 months later I had a really bad episode of wracking chills and muscle aches just last pm. Feel worn out and sore this am. Why after all this time did I have this reaction? Have never missed a dose, so it’s not like I am reintroducing medication to my system, Anyone else having this problem?”

Msr2323 (taken for 2 to 5 years) August 5, 2017

For Multiple Sclerosis “I’ve been on Avonex almost eight months. A little flu like symptoms the following day. It gets worse if I’ve had too much coffee, less ‘achey’ if I’m drinking plenty of water the day before. I’m fairly new to MS so don’t know if it’s stopping the lesions but I feel better than a year ago. ‘Fortunately, I am a copay assistance program so it’s zero out of pocket. Thank you Biogen.”

Teri99687 April 19, 2017

For Multiple Sclerosis “I am sorry to hear of those of you for whom Avonex hasn’t worked. Either I am in a minority or just lucky with how it has helped me, I have been on Avonex for almost nine years and he first month was a challenge….shivers and aches shortly after my injections. Ever since, however, it has only been a minor inconvenience. I take two Advil an hour before my shot and only experience what I call a bit of a “funk” 24 hours later, other than that, it is a breeze, thank goodness!My biggest challenge was the 1-1/ 4 inch needles so I changed to 1 inch. Much less daunting!I have never missed a shot in almost nine years and don’t plan to miss one going forward.Best to all of us MSer’s!”

Feelinggood! February 11, 2017

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.