CYCLOPHOSPHAMIDE: FDA Approved Drugs and User Comments

User Comments:

Cytoxan (cyclophosphamide) for Multiple Myeloma: “So far so good. Being careful and isolated is important while preparing for bone marrow transplant (BMT). Wear hepa filter mask when outside. Rest and drink 100oz.of water per day. Caretaker is the most important person that can help you get thru this. My wife is my CT. I have experienced joint pain, fatigue and some sweating at night. Like I said so far so good. My first chemo was Valcade and Revlimed and dexamethasone. Has been going on for 8 months so far.”

Dr.MOG (taken for less than 1 month) July 6, 2017

For Chronic Myelogenous Leukemia: “My hemoglobin is going back up. No transfusions needed. Some small sores in mouth upon waking up in am. Some lower back pain in am. Which goes away with activity. Need to drink lots ow fluids. Overall, this drug is really helping as I am felling much better and have returned to a very active life style.”

Olaf III March 31, 2017

For Multiple Sclerosis: “I received cytoxan IV for Multiple Sclerosis. I don’t remember how long I lasted before I had a seizure. I have had a seizure disorder since I was 6 years old or younger. This was the worst seizure I have had since I started having them. I have read the site and was surprised to see that it is not listed as a side effect. Otherwise, it wasn’t a bad experience. I lost 1/2 of my hair and it came back thicker.”

jill84 (taken for 1 to 6 months) October 27, 2015

For Ovarian Cancer: “dr determined that I had reached maximum lifetime dose due to the fact that after complaining for more than a year about severe epigastric pain, an egd showed that at least 60% of my stomach lining was sloughing and actively bleeding- I now have chronic hypomagnesiumemia and chronic pancreattis”

mhegedus1960 (taken for 2 to 5 years) September 15, 2015

Cytoxan (cyclophosphamide) for Chronic Myelogenous Leukemia: “Full blown blast crisis. Had extreme joint and bone pain felt like sunburn while having your skin smacked and twisted. Went to ER got diagnosed with leukemia got bone marrow test to confirm. Needed afforesis immediately took four days. Then needed transfusions then chemo which included cytoxin. Great medicine got my counts down quick so remission came quick. But because I was ph also it took other expensive and research study trials to help me. But once I was in remission they used high doses of Cytoxin with radiation and others to get me into complete remission. Then stem transplant.”

jj mn (taken for 1 to 6 months) June 18, 2014

Cytoxan (cyclophosphamide) for Multiple Sclerosis: “My experience with Cytoxan was very good. Prior to starting this treatment I was having difficulty with most activities, including walking, writing and even dressing. After a few treatments I was performing these and many other activities quite well. I continued with the treatments for over 3 years (with 1 treatment every 4-6 weeks). Now I am having tysabri treatments every 4 weeks with good success.”

Anonymous March 16, 2012

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.