FDA Approved Drugs and User Comments: EVEROLIMUS

User Comments:


Afinitor (everolimus) for Neuroendocrine Carcinoma: “I started this April 2016 the side effects did not start until June. It started with diarrhea, then hemorrhoids ,then itching, weight loss, loss of appetite. I kept telling my doctor something was wrong but he told me to eat anything I wanted but the final situation was I got an infection in my right eye I was in hospital for 10 days. He only came once to tell me to stop taking the Afinitor. Upon release I had to go to a doctor who specializes in infectious diseases for 2 months and this was everyday. Weight wise I went from 162 to 124 I am now just skin and bones also the tumor just kept growing I went to another cancer doctor he performed surgery to remove the tumor. This medication is the worse”

Anonymous (taken for 6 months to 1 year) January 20, 2018


Afinitor (everolimus) for Renal Angiomyolipoma: “I had my left kidney removed June 2016 and part of my left lung as it had metas. I was on Sutent and very ill and on another drug that did not work. So far this is helping to shrink my tumors in my lungs. The only side effect is a slight cough and some fatigue. Our family almost can not afford my drugs. So I have to change to the cheap generic drugs”

Dsingh1900 (taken for 1 to 2 years) January 8, 2018


For Breast Cancer: “Sorry but after 69 days had to stop. Based on genomic testing this drug was used to treat platinum-based resistant ovarian cancer with pleural effusion. I suffered insomnia, indigestion, lack of energy, dry skin. My pleural effusion did not improve and this drug made it worse. My CA-125 tripled under this drug. It just did not work for me despite genomic testing. Glad to hear it helped others though.”

Fighting It (taken for 1 to 6 months) September 23, 2017


Afinitor (everolimus) for Brain Tumor: “My daughter is been taking Afinitor 5 mg for a brain tumor, cerebellar pilocytic astrocytoma grade 1, the tumor after a MRI every 3 months is stable, no grows, after 2 surgeries this pill is helping to keep all under control. Thanks God!”

Hope Mom (taken for 6 months to 1 year) January 16, 2017


Afinitor (everolimus) for Breast Cancer: “Although the medication did effectively treat my cancer the side effects were so severe that I decided to discontinue use of the drug and try an alternate treatment. Skin rash started on my hands initially and spread to my entire body causing severe itching and scratching which led to something looking like opened bug bites all over. Severe gum irritation described by my dental hygienist as your gums are flapping in the wind, also red swollen gums which caused me to be unable to eat anything not soft. Lost 10 lbs the first two months. Also projectile vomiting, diahrea and nausea. At three months I found it had made me diabetic and raised my triglycerides to over 500. That’s when I opted to stop treatment.”

Lifer lifer lifer (taken for 1 to 6 months) March 15, 2016


Afinitor (everolimus) for Breast Cancer: “Although the medication did effectively treat my cancer the side effects were so severe that I decided to discontinue use of the drug and try an alternate treatment”

Lifer lifer March 15, 2016

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.