FELBAMATE: FDA Approved Drugs and User Comments

User Comments:

For Epilepsy: “So far it’s been working good and I’ve been seizure free. My last medication was Depakote and that just didn’t work at all I was having seizures at least once a week. Unlucky for me I experienced extreme side effects with felbamate such as insomnia, nausea, weight loss (which I don’t mind too much) and weakness in the muscles. At first the drug kept me in a real surreal state of mind the first two months I was on it. I was at the highest dose and my doctor decided to lower it to help with the nausea and surrealism. Even after that food just doesn’t look appetizing. It helped with the nausea but the surrealism comes around every now and then. So the drug itself is great but the side effects are just very extreme.”

Roxyponcd February 3, 2017

Felbatol (felbamate) for Lennox-Gastaut Syndrome: “Felbamate worked very well for my son. He was on the initial trial and has been on it for decades. I would never take him off of it. He uses it in combination with a couple of other drugs. Onfi did Not work and had side effects.”

Lynne Y July 21, 2016

Felbatol (felbamate) for Epilepsy: “Ineffective med that resulted in extreme weight loss and made cognition practically impossible so I did not pass my oral exam before nor was I even able to understand the questions my graduate committee members were asking. I got off of it at that point then went from a 28″ waist back to a 32″.”

stex (taken for 1 to 2 years) July 17, 2016

For Epilepsy: “Made me incredibly ill for first couple of weeks. Nothing else worked. But this did. No more grand mals. Seizure free, so long as I take the prescribed dose. There is the risk [blood tests a must for safety] and I take the max dose, so I take 6 600mg tablets a day and I am only 26/Female, so that can be annoying, but you got to do what you got to do. I also take vitamin supplements.”

eva2 October 20, 2015

Felbatol (felbamate) for Epilepsy: “Started taking Felbatol in October 1995. Until then had been on several medications, nothing would stop my seizures, not even a combinations of medicines. By April 1996 I was almost seizure free. For over 17 yrs I have been seizure free. No one, unless they have experienced this, can imagine the change in all of our lives.”

yeteps October 12, 2013

Felbatol (felbamate) for Epilepsy: “Caused severe insomnia for the first two weeks, which went away. No other side effects. Does require blood tests. Now 8 weeks seizure free, down from 20-25 month of complex partials and grand mals. A miracle, as long as you understand and accept the potential serious side effects.”

Anonymous July 3, 2011

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.