FINGOLIMOD: FDA Approved Drugs and User Comments

User Comments:

Gilenya (fingolimod) for Multiple Sclerosis: “I like the convenience of it being a pill. The other medications I’ve taken for ME have been injections. Problems I’m having are thinning hair & hair loss.”

Kpoteet (taken for 6 months to 1 year) November 2, 2017

Gilenya (fingolimod) for Multiple Sclerosis: “Today I’ve chosen to completely stop this med. On paper it’s working, no new scars on either spine or brain but I’ve completely lost my personality, interests, myself and my life! Before taking I could walk without falling over my ankles, I used to be able to get up in the morning, I used to get dressed and take care in my appearance, I used to get by without any naps, I used to be able to clean my house, I used to see the funny side and now I’ve completely changed as a person. I cry all the time, I’m so angry, I lose my cool over stupid stuff, I look like crap because I have no energy, I’ve gone over a stone/half in weight, I fall and can’t hardly walk anymore. I wish I never started this drug.”

Natz61 October 18, 2017

Gilenya (fingolimod) for Multiple Sclerosis: “Have just been diagnosed with Relapsing-remitting MS have been on Gilenya since March 2017 only side effect at the moment is constant joint pain, wondering if anyone else has experience this? Is there any pain relief for the joints that actually works?”

andbro October 14, 2017

Gilenya (fingolimod) for Multiple Sclerosis: “Hair loss, persistent headache”

Anonymous (taken for 1 to 6 months) October 4, 2017

Gilenya (fingolimod) for Multiple Sclerosis: “Gilenya worked wonders for me the first 18 months, I felt great, MS stabilised, then I started slowly getting worse, fatigue, dizziness, bad headaches, still no MS progression or relapses but I felt awful! Elected to take the chance to come off the drug and try another just to feel better, within 6 days after stopping G I felt amazing, no more fatigue, no headaches and the dizziness has eased, at day 18 off so far and I continue to feel better each day. Clearly does its job but at the expense of my life it just wasn’t worth the side effects.”

Steffyb33 (taken for 2 to 5 years) July 10, 2017

Gilenya (fingolimod) for Multiple Sclerosis: “Can’t tell you how much better I feel!On Rebif for 4 years always sluggish and not much confidence in my ability to get around, I didn’t realise that it must have been making me feel worse.Now on fingolimod for a month and ability to handle the heat has more than doubled,I sleep better and it’s like a fog has cleared from my outlook.Still carrying on running a small company and looking to the future with a much more heathy attitude.”

Tony 1972 July 6, 2017

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.