FDA Approved Drugs and User Comments: FYCOMPA

User Comments:


For Epilepsy “I have been on every medication and Fycompa was the worst. I was prescribed 2mg in morning and evening. I would get so dizzy that I could not stand and walk. I do not think my vimpat and Fycompa mixed well. On my own I started cutting both so that I did not take them together. The dizziness was less, I could at least function but still a little dizzy. Now my new doctor is having me take fycompa every other day for 10 days and then take me off the Fycomp. He said that medicine last for 300 hours yes 300.”

Anonymous February 5, 2018


For Seizures “My husband takes this Fycompa along with Zonegran and Lamictal. He is slowly coming off the Zonegran since starting. Hasn’t had a seizure since he started 2 months ago but he has turned into the biggest Ass you have ever met. Told him the other night I think I might prefer the seizures over his personality change. I hope this levels out soon.I told him we should call it Fightcompa!”

DHarts (taken for 1 to 6 months) November 9, 2017


For Epilepsy “This medicine has made me more angry than usual and it doesn’t help with my seizures. It also makes me sleepier than usual.”

notyouraveragegrillxox (taken for 1 to 6 months) September 18, 2017


For Epilepsy “I have generalized epilepsy and very hard to control … fycompa was working like the magical drug for the first 2 months then all the side effects hit me like a rock , the first was anger I would get mad and irritated very easy which wasn’t like me and personality change is a big one … being someone your not..all the bad side effects I got . but seizure free now for a year..”

AB2001 August 28, 2017


For Epilepsy “My son had a tough case of seizures, that generally occurred overnight, and we had difficulty achieving seizure control. After exhausting many meds, a doctor told us we’d have a 3% chance of finding a medicine that would control his seizures. The seizures started right when he turned 4, he’s now 5. Eventually the cocktail of Fycompa and oxcarbazepine did the trick; 10 months seizure free and counting. Also interesting to note is that he and I both have a genetic variant of unknown significance on the CACNA1A gene. I’ve never had seizures but he has. He is experiencing side effects, most noticeably, he gets groggy after taking the Fycompa and oxcarbazepine before bed. Also mood swings and behavior but part of that is being 5.”

DaveGrohl (taken for 6 months to 1 year) June 13, 2017


For Epilepsy “Started on this medication during its study phase. Just makes me real tired and in a “fog” in the morning. If still up an hour after taking it I sometime feel “drunk”, balance is altered.”

Dhaniboi (taken for 5 to 10 years) May 7, 2017

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.