HYDROXYUREA: FDA Approved Drugs and User Comments

User Comments:

For Anemia, Sickle Cell: “I am 44 I used to take Hydroxyurea for many years. I stop being hospitalize as often I use too. But my nails were brittle ,my belly had bad pain inside, my hair was coming out and last my teeth in my mouth was falling out. Went to the dentist they said it’s the Chemo in the drug . So I stop taken it. But my teeth are all so bad now and yet I have no dental. I am great full for not being in the hospital like I used too but my teeth are all mess up.”

Avian44 (taken for 2 to 5 years) December 7, 2017

For Thrombocythemia: “Medicine takes platelets down but when pharmacy changed manufacturers my skin itches very badly. I will try to go back to old pharmacy”

kp27 (taken for 1 to 2 years) May 3, 2017

For Thrombocythemia: “I am 80 years and have been taking this drug for 7 years without problems, it kept my platelets around 600,000. Then I developed open sores on my fingers. A blister would form, pop, and then the sore would be exposed and wouldn’t heal for weeks. After that I developed wounds on my ankles. I developed 3 open, non-healing ulcers on my ankles that were so painful I had to go to the hospital. All the while my hematologist, my primary doctor and all the hospital doctors shook their heads and said they didn’t know what was wrong. Then my son did a google search and found that these horrible skin ulcers and sores were a rare side effect of the hydroxyurea! I am now off the drug and with a new hematologist and a new drug Jakafi.”

Nick’s mom May 1, 2017

Hydrea (hydroxyurea) for Chronic Myelogenous Leukemia: “I was asked by my Doctor in Mumbai, India, to take Hydroxyurea 500 for 10 days and I got this Capsules of Hydrea from the store.my platelets were 650000 to start then After taking the capsules for 10 days the platelets count came down to 570000. I was advised to further continue the capsules for another 30 days. After 30 days the platelets count was 432000. I have not experienced any side effects.”

Hemendra G Desai November 28, 2016

For Thrombocythemia: “Bad side effects (or what I would consider bad side effects and not to be tolerated) – 71 year old female, 58 kgs: been taking 500 mg a day for approx 2 and a half months. Recently experienced fever, chills, headaches, muscle aches, extreme tiredness, lack of appetite – enough that I could not function and spent days in bed. Waited 5 days, took another dose and was back in the same position the next day. Decided to stop medication for next few weeks. Blood test due in 2 weeks and see Specialist in December.”

Lizwon (taken for 1 to 6 months) October 20, 2016

For Polycythemia Vera: “My mom is in her 80’s and was given this drug a year ago. Shortly after, she developed red (painful) nodules on one arm and then the other that would NOT go away until she was finally put on prednisone. She also has suffered from unexplained sore throat, difficultly breathing, along with no appetite. No doctor can’t explain what the nodules are, not even with many, many, biopsies, blood test, cat scans ,etc. She has a feeling of overall sickness that she cannot describe, has been hospitalized multiple times over the last year due to the symptoms. Again, all doctors say it’s NOT the hydroxyurea that she has to be given when her hematocrit numbers climb too high. Here we are a year later with no answers and my Mom is still sick.”

Anonymous (taken for 1 to 2 years) January 6, 2016

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.