FDA Approved Drugs and User Comments: ONFI

User Comments:


For Lennox-Gastaut Syndrome “It has an opiod effect. I forget words I’ve know all my life.I am more fatigued. My doctor prescribed it for me “because”.I haven’t noticed any effect. Coming off the drug, my foot and upper leg get shaky. It is also a very expensive drug.”

Harry 6000 November 20, 2017


For Lennox-Gastaut Syndrome “Justin became very shaky, weak, lost stability that he has not gained back. He went into massive seizures when on the drug. After two hospitalizations, we took him off. It has been over a year and he continues to have difficulty with standing up in the mornings and walking all the time.”

Lynne Y July 21, 2016


For Lennox-Gastaut Syndrome “The worst of 32 tried over the past 41 years.”

STex April 20, 2016


For Lennox-Gastaut Syndrome “This has been the best medicine for Lennox-Gastaut Syndrome in our sons 11 years. It was tough going for about 6 months of severe highs and lows of crying to laughing hysterically. But getting through that has been amazing. He’s more vocal, his pupils are not staying dilated and he seems to understand more. I would tell any parent looking for help to please give this medicine a try.”

Caleb’s mother February 9, 2014


For Lennox-Gastaut Syndrome “Worked really well for several months, then breakthroughs. Adding Banzel now.”

MimiMax’sMom January 18, 2014


For Lennox-Gastaut Syndrome “Great.”

alex tham (taken for 1 to 6 months) January 16, 2013

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.