PIMOZIDE: FDA Approved Drugs and User Comments

User Comments:

Orap (pimozide) for Tourette’s Syndrome: “My son has just started 1mg of orap a week ago with no improvement. Waiting to go up to 2mg after another week. He has tried lots of meds and nothing works orap is our last hope but I’m worried this is not working also. Should we see some improvement yet”

Rosewood26 October 26, 2017

Orap (pimozide) for Tourette’s Syndrome: “I am glad to share with you that this drug has saved my life, I used to tic a lot but after using 2mg of Orap 90% of my tics are gone. Please start with low dose at first so that your body can get used to it.”

MG Norway May 22, 2017

Orap (pimozide) for Tourette’s Syndrome: “I was diagnosed at 18 but has had mild tics since I was about 5. They got much more intense as I got older and I was first put on a few other drugs but none really helped. I’m on 8mg of orap a day and it helps for the most part until I’m in public or a stressful situation but has generally helped. I started getting muscle spasms as a side effect but was put in benzotropine for them and they’ve gone away now. It makes me a bit drowsy and I had dry mouth for the first few weeks but with water and coffee I’m able to function fairly normally! My tics are still obvious but improving. Overall it’s been helpful.”

Thefreckledgirl (taken for 6 months to 1 year) November 17, 2016

Orap (pimozide) for Tourette’s Syndrome: “I was 7 yrs old when I starting with tics & when I was 12 I was diagnosed with mild Tourette Syndrome. I gained 100lbs plus during the 15 yrs that I was on Orap, I developed medicine induced anxiety, cotton mouth, fatique/sleeping all the time, my menstrual cycles were messed up, my thought process & decision making was not balanced, I developed temp. infertility, my prolactin levels were elevated dangerously high. I never should of been on Orap to begin with, Orap is for severe cases of Tourettes after ever other medicine has been tried..Orap is a last resort at a very low dosage…Please …Please proceed with caution if you do choose to take this medicine. At age 44, I am blessed to be here today to type the rating of this medicine.”

Roxx1972 August 8, 2016

Orap (pimozide) for Tourette’s Syndrome: “My son was diagnosed with Tourette syndrome at the age of 6 and he is now 12. He has taken everything clonidine, klonipin, seizure meds, topmax, haloperidol, and a host of other meds at first the Orap was a God send because he went from a lot of meds to only 3 meds. His doctor had a hard time getting approval at first because he wasn’t quite 10 yet, but after the approval, for the first 6 months it worked well, my son began to gain a little weight but it was a good thing because he lost so much with the other meds but after that first 6 months his tics began to increase.”

ShondaB July 13, 2016

For Tourette’s Syndrome: “The side effects were awful. I was not able to get out of my bed because I was sleepy and tired all the time and at the same time I was restless. And I just didn’t stop take them immediately (after the first week) because my psychiatrist said it had no side effects at all and I trusted him 100% on that. I thought I was just tired because I had just finished the 1st semester of university. I stopped taking them 2 and a half weeks later when my mom suspect it was probably the medicine causing me all of this.And it didn’t even help me with my tics at all.”

Leom June 3, 2015

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.