PRIMIDONE: FDA Approved Drugs and User Comments

User Comments:

For Benign Essential Tremor: “I’m a 71 year old male and developed tremors several years ago. It progressed so that I couldn’t sign my name and my head was wagging. About 18 months ago, my doctor had me try Primidone 50mg at night. I experienced immediate improvement so that I could once again write cursive. Not only did the tremors greatly improve, but the chronic pain in my thrice-broken arm was reduced so I could manage it with occasional Acetaminophen. Previously, I had to take opiates at least once a week to knock back the pain and manage it in between with Acetaminophen.Unfortunately, I started having very vivid, very bad dreams. I started praying about the dreams before going to sleep. Now I have very vivid, very good dreams on Primidone. Now, minimal shakes, minimal aches and pains, and good dreams.”

Duncan (taken for 1 to 2 years) March 6, 2018

For Benign Essential Tremor: “I’m getting ready to take 50mg primodone tonight before I go to bed. I’ve had hand tremors ever since I broke my left arm in 3 places in 3rd grade. I was bullied all through school. Pretty much my whole life. Several years ago I went to the doctor he put me on Inderal that worked for about eight years until I started having stomach problems and the tremors just kept coming back so I quit. Happy that this stuff works really getting tired of being shaky all the time and I don’t get out of the house because of the way people look at you they can be very mean”

Sassysue February 25, 2018

For Benign Essential Tremor: “50 mg/day. Helped but after a couple of weeks started to itch in very personal places. Kept taking because itch was preferable to shakes.Then developed vertigo and quit taking it. Vertigo went away. Resumed because vertigo and itching was preferable to shakes. Vertigo and itch subsided after 4 weeks. Shakes somewhat better.”

Harry M November 23, 2017

For Benign Essential Tremor: “At age 66, increasingly worrisome central system tremors. Embarrassing to dine in restaurants — at salad bars a staffer would ‘follow’ me around putting things back in their proper buckets. My neurologist started me on 1/4 tablet at night, and the next morning, my life had changed. I could type, use the computer mouse and other tasks effortlessly. Over 6 months, dosage was increased and now levelled off at 2 per day. Absolutely NO side effects noted, in fact, quite the opposite.”

Anonymous (taken for 6 months to 1 year) November 3, 2017

For Benign Essential Tremor: “The Neuro Dr started the treatment of my Writers cramp with Propranolol. It didn’t help and my heartbeat went faster instead.I was switched to Benzyhexol (Bz). After taking just 2x5mg I’d loose control of my legs. I am 48yrs I was often disoriented after taking Bz. My Writer Cramp condition remained same still. About 3mths ago, my drug was changed to Primidone 125mg twice a day. Worked great I could write legible once again. But after 3/4wks my writing deteriorated. Dose was increase to 250mg twice a day but still no improvement after 45 days of increasing dosage. I had to stop because I was having problem ejaculating.After 10 days, I resumed use yesterday 250mg only @ night. In 24hrs noticed great improvements. My plan is to take 250mg/wk. I’ll update in a month.”

ooje (taken for 1 to 6 months) October 27, 2017

For Benign Essential Tremor: “I had very early onset of Essential Tremors. Can remember it as far back as early grade school. It is a progressive disorder and I am now 77 – need I say more. Was about 30 before they put me on Inderal. At about 50 something when I went to a specialist that put me on Primidone. Had to start slow. Have worked it up to the max amount I can take due to my low weight. It does help, but wish I could take more.”

Nammy (taken for 10 years or more) October 21, 2017

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.