REMICADE: FDA Approved Drugs and User Comments

User Comments:

For Rheumatoid Arthritis “I was diagnosed with Inflammatory Arthritis (RA) September of 2015 (29 years old). First I was on Plaquenil which never seemed to help and on top of it I developed a terrible hive rash which went away once I stopped taking it. Next I tried Humira. That worked great for about 6 months before my symptoms came back. Now I’m on Remicade and have been for almost a year now. It works great. I get my infusion every 8 weeks and have NO SYMPTOMS!! I love Remicade. It gave me my life back. I am slightly concerned though because I’ve developed another rash that won’t seem to go away after 2 months of dealing with it, trying steroids etc etc. Cross your fingers it’s not Remicade causing my rash. I’ll cry!”

Ashers2004 (taken for 6 months to 1 year) December 12, 2017

For Ankylosing Spondylitis “Symptoms of ankylosing spondylitis started at 17. Was diagnosed at 31. Tested positive for the gene HLA-B27. Diagnosed with Crohn’s at 33. Psoriatic arthritis at 50. Have been on remicade every 6 weeks for 9 years. It is no longer working for me. I am having flares of each disease. Any suggestions?”

jcs5313 (taken for 5 to 10 years) December 3, 2017

For Crohn’s Disease “I was on remicade for about 4 plus years maybe 5. This medicine does a number on your immune system. When I started taking the medicine there were no warnings like there is now. But basically felt great. I live in Midwest played hockey get with this stuff. The problem was I travelled West to Nevada and got Valley Fever. Well had surgery about 4 months after being in Nevada and Midwest doctors had to idea. Well come to say I had intestine removed to remove narrowing but was unable to take Valley Fever pills and pills to stop Crohn’s from coming. But valley fever would kill me as Crohns would just be pain. So long story short don’t go or live in fungical areas and take this unless you don’t value your life and that will take you down.”

Bob E M October 17, 2017

For Crohn’s Disease “I was on Remicade for five years and the Crohn’s Disease went into remission BUT it did a number on my immune system. I got staph infection and eventually a septic hip. Had to have hip surgery which consisted of a spacer for 6 months as well as medication through a pic line. In hospital for three and a 1/2 months and nearly another 3 months at home before I was in condition to have a hip replacement. I also have kidney disease which is partly due to medications I took while fighting Crohn’s disease. Just waiting to die and get these diseases over with. Really consider the side effects of Remicade – septic hip was not mentioned.”

Don’t have one October 9, 2017

For Psoriatic Arthritis “I had my first infusion of Remicade last week. I have been unbelievably sleepy for the last 4 days. I have read that this is a side effect but I am kind of surprised by the level of sleepy that I am experiencing. I hope that this is just me catching up on my sleep as I have not been sleeping well due to pain for sometime. I do like the infusion so much better than the self-injected Humira. I hated that needle and found myself putting off my injection for a couple of days or “forgetting” that I was supposed to get it. Hoping for good results with Remicade.”

Shuleran (taken for less than 1 month) September 10, 2017

For Rheumatoid Arthritis “I was on enbrel for nearly 9 years before it stopped working and humira didn’t work at all for me. I started remicade nearly 4 years ago, my Dr started me out getting an infusion every 8 weeks and over the first year he brought it down to every 4 weeks. It’s been working great but after the first 2 years my knees started bothering me but after some injection at my orthopedist they have been under control. Now both my elbows are really bothering me, at first it was when I woke up but now it’s 24-7. I go in for my next infusion next week and will talk to my rheumatologist about the pain. I was curious to see if anyone else has had knee or elbow pain after being on remicade”

Welcho (taken for 2 to 5 years) August 17, 2017

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.