FDA Approved Drugs and User Comments: RYTARY

User Comments:


For Parkinson’s Disease “I’ve been on Rytary since 2015 and at times was on 5 pills 4 x a day of the 48.75-195 dosage. Partial neuroleptic seizures were a result, mild psychosis, paranoia, anxiety, mood swings, depression, dyskenisia dystonia, impulse control, sleeplesness, among others, all things I’ve dealt with at some point along the way. I’m now on 3 pills 5 times a day. With a small dose of 2mg artane in between 4 x a day. I have not been able to really lock down whatever makes it work. It is wildly inconsistent but when it’s on it’s on, and I get some normal time. Certain strains of medical marijuana help increase the efficacy of this drug. Kicks in sooner and can give me up to 6-7 hours of normal time. Instead of 1hr to kick in and 1-2 hrs normal time.”

Your Nickname (taken for 2 to 5 years) November 13, 2017


For Parkinson’s Disease “My wife was placed on Rytary and was doing fine.We switched doctors, and she was taken off Rytary and was give Sinemet and she went down hill to the point we had to cancel a vacation. We switched her back to Rytary, and will not go back. If you have Parkinson’s, try Rytary, you may do much better.”

No way Sinemet (taken for 2 to 5 years) October 31, 2017


For Parkinson’s Disease “I’ve been taking Rytary since Feb 2016, I settled in on taking 3 capsules of Rytary 48.75mg/195mg 4 times a day & 1 capsule of Rytary 61.25 mg / 245 mg at bedtime initially this dosing combination allowed me to achieve virtually no down time until, I experienced some serious stress which eventually led to 4 to 6 hours of off time a day as well as significant dyskinesia between doses, especially as the day wore on. Next I was favorably evaluated and underwent DBS surgery in Feb 2017 with stimulation I’m still on the same day dose, but have stopped taking 2 capsules Rytary 48.75mg/195mg at bedtime with virtually no down time and no noticeable dyskinesia. Rytary has work very well for me during this time. With DBS hope to reduce daily Rytary”

Anonymous June 3, 2017


For Parkinson’s Disease “I took Rytary for approximately 1 month in 2016. The worst experience in the 14 years I have had Parkinson’s disease. My Neuro tried different doses at different times of the day, it would only work with Sinemet to help kickstart at first, after about a week it was no longer predictable. Several times I had to crawl because I could not walk, once I got up to go the bathroom but could not cross the threshold and had to urinate on the floor. The last day my Neuro asked me to try 4 capsules at once as a last resort, It was 2 hours before I could get out of bed!I still feel the effects to this day.”

gar wootton (taken for 1 to 6 months) April 19, 2017


For Parkinson’s Disease “The initial results seemed to improve on times, compared with Sinemet, however the side effects had a devastating impact on my family relationships. Out of nowhere I became a compulsive gambler. Other issues of sleeplessness, hypersexaulity ,anxiety, just to name a few. The minute I stopped using Rytary all these issues went away. To be fair, impulse control issues were a concern with the regular Sinemet product but I was always able to stop the above negative behaviors. Rytary warning label spells out these side effects so anyone with impulse control problems should be on guard when trying this product.”

nurhan (taken for less than 1 month) March 29, 2017


For Parkinson’s Disease “I have been on Rytary for 10 months. At first it worked well: 2 pills (23.75mg,95mg) 3 times a day with one at bedtime. Since the 6th month I have had INCREASING DYSKINESIA and muscle cramps. In November they were unstoppable and I had to go to the hospital for a relaxant IV. (The ER did not know what the heck to do). I was screaming with pain. I am trying different doses and times but I believe the delivery is defective and uneven. I have no control over the delivery. I do not think my PD disease could have progressed tha t fast in 4 months. I was “stable” and in control on Sinemet. :1/2 S. 25/100 every two hours for a total of 450 to 500 mg a day. I was sleeping well. Now I am bent over, in PAIN, never know how I will be.”

GrrrBear (taken for 6 months to 1 year) December 30, 2016

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.