FDA Approved Drugs and User Comments: SANDOSTATIN

User Comments:


For Carcinoid Tumor “After about 18 months of 28 day LAR injections, I started having joint and back pain. I believe this is actually fairly common. I’ve asked who has this on various support group web sites…. lots of people! One person had it start up after their first injection. However, more respondents had it start after a year or more. The main location of my pain is in the hips. I’ve been to several ortho doctors who say I do not have but a slight bit of arthritis in my hips- certainly not enough to warrant hip replacement & in the range of an average amount for my age….. the lower back pain started prior to hips. It has been deduced that the pain must be a side effect of the Sandostatin- after x-rays, bone scans, MRI’s, CT-etc.. nothing looks abnormal”

Beepsie (taken for 5 to 10 years) April 16, 2017


For Small Bowel or Pancreatic Fistula “SMALL BOWEL FISTULA. Had a hysterectomy and my bowel was cut. Developed fistula. Had 2nd surgery by general surgeon and was developed a fistula of the small bowel after 4 resections of the small bowel. Has been a high output fistula through the incision site, at the belly button level. Octreotide did slow down the fistula output from 1350ml/24 hour period to now just a trickle (a ml or so per day). On some days the output is zero. SIDE EFFECTS have been many…burning of the throat, much hair loss, whole body rash including my face and in my hair, nausea and dry heaves. I was first on 50mcg 3 times per day and that was increased to 100mcg three times per day. That’s when the hair loss and rash started.”

SUNNY663 September 11, 2014


For Carcinoid Tumor “I agree with the other review. This product has been a life saver for me. It has completely taken away my other symptoms. The only drawback for me is fatigue, but honestly I can live with it considering everything else that I am dealing with prior to taking this medication.”

brauny (taken for 1 to 6 months) January 4, 2013


For Diabetes, Type 1 “Great medicine. No side effects.”

Anonymous October 31, 2011


For Diarrhea “My mom is an OVCA patient undegoing chemotherapy with Docetaxes and Gemcitabine on a 3-week cycle and she had developed severe diarrhea accompanied by fever probably due to neutropenia and Loperamide/Imodium did not help her even after one week of taking it. The doctor suggested Sandostatin and after 2 doses of 100micrograms 8 hourly, the diarrhea stopped completely.”

Aadil December 30, 2010


For Carcinoid Tumor “This medicine has been a life saver for me, nothing else worked. In a couple of days I felt improvement – no uncontrollable diarrhea. “

gthomp August 10, 2009

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.