FDA Approved Drugs and User Comments: SUTENT

User Comments:


For Renal Cell Carcinoma “I collected my brothers ashes y/day. He was on sutent for sarcomatoid kidney cancer. Sutent made him so very very ill, it destroyed any quality of life he had left before he died (6 months from diagnosis to his passing). He died after 5 days in hospital vomiting blood, possibly from perforated stomach/ intestine/bowel. This drug is so cytotoxic my local pharmacy refused to accept the remaining tablets we had after he died. Sutent, I called it an evil drug as that’s what it is.”

Deg (taken for 1 to 6 months) March 1, 2018


For Pancreatic Cancer “I’m 63, diagnosed with stage 4 Pancreatic neuroendocrine tumour (PNET) on 5/18/16, I was taking Afinitor until January of 2017, but my tumor stopped shrinking and I was developing a mass in my lungs from the drug. I started taking 50 mg of SUTENT in January 2017, 28 days on and 14 days off. Side effects were mild sores on the sides of my tongue, hair and beard turning white & bottom of my big toe became real sore and the skin peeling off during the 28 days on. During the 14 days off, everything returned to normal. Starting today 8/15/17, I’m being reduced to 37.5 mg to see if this will stop my big toe from hurting on the bottom and the skin from peeling. My tongue barely gets sore now and my hair color has gone back to normal. I get a Sandosatin shot monthly for the diarrhea”

Neuroendocrine carcinona (taken for 6 months to 1 year) August 15, 2017


For Renal Cell Carcinoma “Thanks to God, my dr and the makers of sutent, I’m still here. I got my left kidney removed and three years later I discovered a mets in the spine and liver which was treated with radiation followed by sutent. I started with 50mg but couldn’t tolerate so it got reduced to 25mg. The condition is stable for 8 months now and the side effects are bearable. I’m very grateful and recommend this medication to anyone who needs it”

Very grateful September 15, 2016


For Renal Cell Carcinoma “Left Kidney removed by radical nephrectomy Dec 23, 2014, after 3 blood clot caused heart attacks and ablation operation and Follow up in August revealed 7 tumor in lungs and 2 enlarged lymph nodes. Started 50 mg Sutent 28 day cycle on Dec 26, 2015, very harsh side effects including severe diarrhea, vomiting, dry mouth, bleeding teeth and gums, hyperthryroidism, after 3 months. 6 weeks rest and reduced to 37.5 mg and 14 day cycle. After 5 months tumors in left lung had doubled in size and slight growth in right lung. On July 21, 2016 CT showed growth had stabilized but side effects remain severe. Going to 25 Mg 14 day cycle on 27 August.”

Hotmuck July 26, 2016


For Renal Cell Carcinoma “On Sutent 5 months tumer has has halved in size, side effects are unpleasent but bearable. Hair thined out a bit for the first 3 months.”

Shuttlegirl (taken for 1 to 6 months) July 5, 2016


For Renal Cell Carcinoma “I started using sutent 50 mg for stage 4 kidney cancer for last 2 weeks but there is no improvement in blood test result. can anyone please tell me know the time required to get the result.”

Johan jakobsson (taken for less than 1 month) September 23, 2015

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.