FDA Approved Drugs and User Comments: TREPROSTINIL

User Comments:


Remodulin (treprostinil) for Pulmonary Hypertension: “The doctors in my area had given me two months at the most. I was taken by ambulance hospital on the verge of death ,unable to breath , kidneys shutting down , When I got there it was not looking good for me. They diagnosed me with Pulmonary Hypertension and started me on remodulin intraveneously which had to be increased gradually over a period of six weeks. The symptoms were pretty bad usually after an increase which was done every two days. But I started improving after a couple of weeks I was totally off of the oxygen and the cough I had for almost a year went away . Before leaving the hospital I had to learn how to mix the remodulin and how to change the pump- something I have to do every other day . Its compact it is just always attached to me However by wearing coveralls to conceal the tubing and keeping it in my pocket I have been able to return to work . I feel so much better occasionally have trouble sleeping , but not a lot of side effects”

Jed 12345 February 3, 2018


Remodulin (treprostinil) for Pulmonary Hypertension: “I found it to have horrible side effects that caused me to have to take several other meds to deal with the side effects i.e. Jaw pain, nerve pain in legs , site pain, migraines , dizziness, nausea , confusion and depression. I did find my chronic cough was almost completely gone and I was starting to be able to walk further . I stopped after 1 month because the side effects were unbearable”

Red7iris (taken for 1 to 6 months) May 9, 2017


Tyvaso (treprostinil) for Pulmonary Hypertension: “Been on Tyvaso for 3 years. It has improved my PH significantly 10 to 12 puffs a sitting. Always made me cough but recently the cough has gotten worse. Not going to stop just take fewer puffs”

Rob38 (taken for 2 to 5 years) December 22, 2016


Tyvaso (treprostinil) for Pulmonary Hypertension: “I have been on tyvaso for a little over a year now and like one of the users said 9 breathes was to much for me. I stay somewhere between 5 to 7 breathes and it dose wonders for me. However I can’t always find the time to get to the treatment 4 times per day.. I also take adcira and letirius. among the thee pulmonary hypertension( PH) meds I think that the tyvaso has the ability to be the best of them. I just wish I could focus enough everyday to take 4 pr day . Anyone knows anything helpful please comment. yall have a good day and good luck to all with your PH……”

ctm7854 (taken for 1 to 2 years) December 14, 2016


Tyvaso (treprostinil) for Pulmonary Hypertension: “I have been using Tyvaso for 4 months, the first three I saw no improvement. Now I do feel a little better but not much. I live 5 short blocks away from the Mayo clinic in Rochester Mn. and I have to sit down for a few minutes each block to catch my breath. Yesterday it took me 40 minutes to go a quarter mile. Even walking upstairs is hard for me. I just don’t know what to do.”

Bad Habit (taken for 1 to 6 months) September 3, 2016


Tyvaso (treprostinil) for Pulmonary Hypertension: “I have been taking Tyvaso for approximately 6 months now and haven’t had any adverse effects. There are side effects of the medicine, of course, which include cough, sore throat, hoarseness, and occasional headaches and muscle ache, but overall it is worth it for me.”

BRIDGETTELYNN68 (taken for 1 to 6 months) September 15, 2014

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.