FDA Approved Drugs and User Comments: VIDAZA

User Comments:


For Myelodysplastic Syndrome “I had 9 or 10 cycles of Vidaza. It did nothing for my MDS.”

Idonothaveanickname May 19, 2017


For Myelodysplastic Syndrome “Through routine blood check up I was diagnosed with Myelodysplastic Syndrome with no symptoms at all but with blasting of cells 18 and after 8 months from having injected Vidaza, blasting of cells now 0. As I am in remission do I still have to go with the Stem Cell Transplant”

Leticia Reyes March 13, 2017


For Myelodysplastic Syndrome “I was diagnosed with CMML approx 3years ago and treatment of Azacitidine started 17mths ago… It has stopped me from transformation to AML and I even self inject when oncology dept is closed… So once a month I do the subcutaneous injections. My bloods are not too bad at all but once when I was off the azacitidine for five weeks, I was going downhill rapidly approaching AML… I was very lucky to be matched with an unrelated bone marrow donor and was supposed to have the transplant in December 2015 but because my heart is not so good (Atrial Fibrillation) there is concern about it standing up to the trauma of transplant… So I’m really hoping that the azacitidine keeps on doing the business otherwise it may very well be my demise.”

Tony Ceg April 3, 2016


For Myelodysplastic Syndrome “My husband was diagnosed with MDS, no symptoms. He worked out at gym 5 days a week, had just retired, was enjoying life. At Dr’s urging, he started on Vidazia. This was supposed to prevent MDS from going into leukemia and buy time to prepare for bone marrow transplant. He took daily treatments for 5 days, was sick with flulike symptoms, then had breathing complications. The following week, he is in excruiating pain, was hospitalized in ICU FOR 2 weeks, died a horrible death. Pain that no amount of pain meds would control. His last 2 days were in Hospice, so that he could receive the highest doses of narcotics, that can only be administered at end of life. Death certificate read ” multi organ failure “. Vidazia destroyed his internal organs”

Joyneil (taken for less than 1 month) June 27, 2015


For Myelodysplastic Syndrome “Injection site sore for weeks. If in belly, get it beyond belt line. If in underarm, get injections 2 in apart. Day 1, little effect, day 3 start of weakness, day 5 make sure couch fits. 3 days after last injection, start of recovery. Day 5, 2 pints of blood does wonders, day 14 after injection, just hanging on. Maybe another blood pint to help, Day 1, oh gosh here we go again. no vomiting, just strength crashing.”

jcsarge April 15, 2014


For Myelodysplastic Syndrome “Vidaza worked very well and only side effect was some minor constipation cured with softener and milk of magnesia.”

Anonymous (taken for 6 months to 1 year) April 4, 2013

* The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.