What Types of Pain Are Associated With the PV?

For the specific disease, let’s say PV, we should look at the location the pain comes from.

There are three or four big areas of pain that we look at are abdominal pain which is probably the most common. This is usually related to either splenomegaly or hepatomegly, meaning a big liver or a big spleen. If that is the case, then that basically is indication that the disease is progressing and again maybe an indication of the treatment.

The second common site of pain is bone pains. This can be basically an indication of expanding hemoglobin mass in your bone marrow, which can result in stretching of the bone capsule and causing pain. The third, which is quite important especially in PV, ET and myelofibrosis and is rare maybe in other forms of leukemia is if you start noticing pain either in your calves or lower extremities or even in your chest or arms. This would usually be associated with swelling and could be an indication of a blood clot or a deep vein thrombosis.

We do see these in PV and ET and myelofibrosis patients much more commonly than in the normal population or in patients with other forms of acute leukemia. So if you do notice swelling or swelling with pain in any of the extremities, then that would be an indication to let your doctor know to look for blood clots. I think those are the three main kinds of pain that we encounter in PV.

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